NORD® IAMRARE®

By THE NATIONAL ORGANIZATION FOR RARE DISORDERS INC on AppTrack Ninja.

Enroll in rare disease studies

Developed by the National Organization for Rare Disorders (NORD®), the IAMRARE® platform allows you to find and participate in available rare disease studies and registries. Whether you or your loved one has a rare disease, you can take surveys and contribute data that could help advance research. Built with patients and caregivers in mind, the IAMRARE platform allows you to: • Transition between your computer and your mobile device • Opt-in to receive survey notifications that appear right on your device • Answer questions and upload selected health records • Work at your own speed by saving…

Categories: Medical

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